Volume 14 Issue 1 (2018)
Main Articles

Conducting a Large Public Health Data Collection Project in Uganda: Methods, Tools, and Lessons Learned

Bert Stover
University of Washington
Bio
Flavia Lubega
Makerere University
Bio
Aidah Namubiru
Makerere University
Bio
Evelyn Bakengesa
Makerere University
Bio
Samuel Abimerech Luboga
Makerere University
Bio
Frederick Makumbi
Makerere University
Bio
Noah Kiwanuka
Makerere University
Bio
Assay Ndizihiwe
Centers for Disease Control and Prevention
Eddie Mukooyo
Ministry of Health
Bio
Erin Hurley
Centers for Disease Control and Prevention
Travis Lim
Centers for Disease Control and Prevention
Nagesh N. Borse
Centers for Disease Control and Prevention
James Bernhardt
University of Washington
Bio
Angela Wood
University of Washington
Bio
Lianne Sheppard
University of Washington
Bio
Scott Barnhart
University of Washington
Bio
Amy Hagopian
University of Washington
Bio
Published May 14, 2018
Keywords
  • health services research,
  • public health evaluation,
  • research context,
  • data collection method,
  • limited-resource setting,
  • research implementation,
  • project management,
  • research partnership,
  • health system strengthening
  • ...More
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Abstract

We report on the implementation experience of carrying out data collection and other activities for a public health evaluation study on whether U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) investment improved utilization of health services and health system strengthening in Uganda. The retrospective study period focused on the PEPFAR scale-up, from mid-2005 through mid-2011, a period of expansion of PEPFAR programing and health services. We visited 315 health care facilities in Uganda in 2011 and 2012 to collect routine health management information system data forms, as well as to conduct interviews with health system leaders. An earlier phase of this research project collected data from all 112 health district headquarters, reported elsewhere. This article describes the lessons learned from collecting data from health care facilities, project management, useful technologies, and mistakes. We used several new technologies to facilitate data collection, including portable document scanners, smartphones, and web-based data collection, along with older but reliable technologies such as car batteries for power, folding tables to create space, and letters of introduction from appropriate authorities to create entrée. Research in limited-resource settings requires an approach that values the skills and talents of local people, institutions and government agencies, and a tolerance for the unexpected. The development of personal relationships was key to the success of the project. We observed that capacity building activities were repaid many fold, especially in data management and technology.